Article about adopting her son with hemophilia in 2013 and what she wishes she had known.
Blog in English and Spanish by parents with
Explains knee joint function and how bleed impact joints
National organization providing a wide array of resources for individuals and families with bleeding disorders.
State-specific chapters provide everything from information and nursing and pharmacy services to financial aid and insurance information and camps and programs.
Resources, camps, scholarships, local chapters, and publications.
Helps with insurance payments, FMLA, etc., for a wide range of special needs, not just bleeding disorders.
Cooley’s Anemia (Thalassemia specific)
Resources, clinical trials, treatment information, internships, camps, treatment centers, blood drives, conferences and webinars, support for parents who have adopted, scholarships, and news.
Thalassemia Facebook Groups
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