Bleeding Disorders


Article about adopting her son with hemophilia in 2013 and what she wishes she had known.

Article on Infusion


Archive of stories

Video about joint bleeds

Hemophilia Federation of America

National Hemophilia Foundation Chapter Directory

State-specific chapters provide everything from information and nursing and pharmacy services to financial aid and insurance information and camps and programs. 

List of Hemophilia Treatment Centers Nationwide 

National Hemophilia Foundation

Resources, camps, scholarships, local chapters, and publications.

Patient Services Incorporated 

Helps with insurance payments, FMLA, etc., for a wide range of special needs, not just bleeding disorders. 

Cooley’s Anemia (Thalassemia specific)

Resources, clinical trials, treatment information, internships, camps, treatment centers, blood drives, conferences and webinars, support for parents who have adopted, scholarships, and news.

Thalassemia Facebook Groups    

Parenting Thalassemia

Adoptive Parents of Children with Thalassemia