Spina Bifida and Hydrocephalus

Spina Bifida Association

Has a great resource section, with a huge number of links in different categories. 


Spina Bifida Resource Network

Advocacy, adult retreat, financial support, resources, scholarships, and education. 


Centers for Disease Control and Prevention

Data, statistics, research, and treatments. 


March of Dimes

General introductory information, along with information about related and similar conditions. 


National Institute of Neurological Disorders and Stroke

Basic overview with information on clinical trials and links to other resources. 


National Library of Medicine, Genetics Home Reference

General information with a focus on genetics.


Spina Bifida Hydrocephalus Queensland

International organization with a wide array of links to Spina Bifida resources. 


Camp MITIOG - a camp for children with SB


International Federation for Spina Bifida and Hydrocephalus

Member organization where members are organizations led by people with SB and parents of children with SB, with a focus on advocacy and prevention. 


Society for Research into Hydrocephalus and Spina Bifida

Research organization, hosts conferences and maintains links to other organizations and conferences. 

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